Sobrecarga de madres de niños y adolescentes con trastornos del neurodesarrollo

Ludovica pediátr; 25 (1), 2022
Año de publicación: 2022

El cuidado de niños y adolescentes con trastornos del neurodesarrollo implica altas demandas físicas, financieras y emocionales y puede asociarse con el surgimiento de sobrecarga parental. Como consecuencia, aumenta la frecuencia de empeoramiento conductual del menor y de trastornos depresivos y de ansiedad en el adulto responsable. Se describen los casos de tres madres de pacientes con trastornos del desarrollo que presentaron sobrecarga parental para aumentar la visibilización de esta problemática en ámbitos pediátricos. Todos los hijos estaban recibiendo plan psicofarmacológico por la presencia de alteraciones conductuales y solo uno tenía acompañante terapéutico. La detección temprana y derivación de los padres con sobrecarga es imprescindible para mejorar la calidad de vida de los niños y los adolescentes con trastornos del neurodesarrollo y sus familias

Introduction:

The care of children and adolescents with neurodevelopmental disorders involves high physical, financial and emotional demands, and it may be associated with the emergence of parenting stress. As a result, there is an increase in the frequency of minor behavioral worsening and depressive and anxiety disorders in the responsible adult. The cases of three mothers of patients with developmental disorders are described in order the visibility of this problem in pediatric settings. All the children were receiving psychotropics for the presence of behavioral alterations and only one had a therapeutic companion.

Conclusion:

Early detection and referral of parenting stress is essential to improve the quality of life of children and adolescents with neurodevelopmental disorders and their families.

Objectives:

to describe the initial clinical findings of patients with CVID diagnosed at Hospital de Niños Sor Maria Ludovica, between 1981 and 2019. 19 patients were included, 14 were male (74%). All Patients Had a history of recurrent infections, most frequently pneumonia (74%) and acute otitis media (42%). 9 patients suffered from chronic diarrhea (47%), with associated malabsorption in 6 of them. Thirty-two presented with severe malnutrition and 1 patient with gastric metaplasia. One Patient Had Splenomegaly and 1 had Evans´ syndrome. Bronchiectasis were found in 42% of patients at the time of diagnosis. Early suspicion of CVID from pediatricians is essential in order to arrive at a proper diagnosis

Más Relacionados